Ehlers-Danlos Syndrome-a touching poem

Ehlers-Danlos Syndrome

By bigandscarydinosaur, Stone Lake, WI

I walk on these weakened legs
and collapse to the floor.
I laugh at the jokes about me
but I can’t take anymore.

It’s hard to grasp
knowing this is how I’m going to be,
knowing that this body
will always be against me.

I can’t properly use my arms,
and most likely never will,
and because of the damage done
their tremors never still.

My life is full of doctors,
surgeries, and pain.
Most never get to hear
the story I retain.

Those who daire to listen
will never quite understand.
I don’t really expect them to
because no one really can.

I’ve got Ehlers-Danlos Syndrome,
a rare and lifelong fight.
My future’s unpredictable
But I know I’ll be alright.


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